Bogged down by your loved one's cancer? Feeling miserable because your loved one is feeling miserable? Break out of the cancer doldrums. Hit the road!
It may sound trite, but there are many good reasons to do this. First, cancer is already consuming so much of your shared life. You're already wrapped up in the fear, the anxiety, the reality of cancer. It's important to rise above it, even for just a little while.
Take a hour, a day, a week, but make an effort to build new memories. Go to the movies. Go to a new restaurant. Have an adventure in a day. Cancer closes up the world around you, making you a prisoner of your loved one's disease. Plan a "jailbreak" with your loved one. Be whimsical and make it fun. Or be serious and make it moving. Take charge of what can be controlled in life, because cancer is often more than just a disease. It's a lifestyle. Today, more people are living with and managing their cancer. That means there's still time to live, to breathe, to share, to enjoy. Whether you plan a special trip to an exotic locale or a drive through town, reconnect with the ordinary and the extraordinary without packing that cancer. Give your loved one a holiday from the disease. Shove it in a corner, turn off the light, and have some fun.
Memories live in our hearts. If they are bad ones, they can drag us under. If they are good ones, they can motivate and inspire us to believe and to achieve. Hit the road and make some good ones, not just because your loved one has cancer, but because the two of you share a special bond. Get out that nail file, my friend. It's time for you to spring your buddy from that cancer jail. Hit the road!
For more help with your caregiving, visit The Practical Caregiver Guides:
http://www.practicalcaregiverguides.com/
For a free downloadable copy of my ebook, The Practical Caregiver's Guide to Cancer Care, visit my Smashwords page:
http://www.smashwords.com/profile/view/practicalcaregiver
Sunday, January 22, 2012
Friday, December 30, 2011
INCLEMENT WEATHER AND HOUSE FIRE SEASON -- HAVE A PLAN
This is the season when people take unnecessary risks. Are you one of them? Are you endangering your loved one? Be smart. Be prepared. Can you prevent a catastrophe at home? In an emergency, if you need to evacuate the house, what will you take with you?
Start your New Year off right. Take a few minutes today You could save a life:
1. If you don't have smoke detectors or they are out of date, buy new ones and make sure they are properly installed. Replace batteries in your smoke detectors. Use a permanent marker on the back to note the date. This way, you will know it was done.
2. Do you have a carbon monoxide detector? This will alert you if dangerous levels are building up in your home. Buy one and properly install it. If you have one, change the batteries and mark the date, so you know it was done.
3. If you need to get out of the house in an emergency, make sure you have important information that you will need in a convenient folder or on a USB stick. Or save it in "the cloud", so you can access it wherever you are. You'll want contact numbers and any pertinent information on your loved one. Why not also add family information that you'll need? Don't forget to have your loved one's identification and insurance information handy.
4. Consider replacing candles and open flames with battery-operated and independent power sources that are safer. Remember that your loved one may not have the stamina or energy to flee in a fire, so err on the side of caution.
5. If you live in an area that is prone to ice and snow storms, be sure to be prepared. Know where blankets are, have a couple of days worth of food for your loved one that he or she can eat, and emergency supplies on hand -- consider an emergency radio.
6. Figure out ahead of time what you will do if the power goes out, the phones are down, and the roads are closed. Have a plan. If you know a big storm is coming, know where you will go and decide when you will evacuate.
Don't leave your emergency planning until disaster is upon you. Be proactive. And then, sit back with your loved one and relax. Happy New Year!
For more help with your caregiving, visit The Practical Caregiver Guides:
http://www.practicalcaregiverguides.com/
For a free downloadable ebook version of The Practical Caregiver's Guide to Cancer Care: How to Help Someone You Love, visit my Smashwords page or your favorite ebook store:
http://www.smashwords.com/profile/view/practicalcaregiver
Start your New Year off right. Take a few minutes today You could save a life:
1. If you don't have smoke detectors or they are out of date, buy new ones and make sure they are properly installed. Replace batteries in your smoke detectors. Use a permanent marker on the back to note the date. This way, you will know it was done.
2. Do you have a carbon monoxide detector? This will alert you if dangerous levels are building up in your home. Buy one and properly install it. If you have one, change the batteries and mark the date, so you know it was done.
3. If you need to get out of the house in an emergency, make sure you have important information that you will need in a convenient folder or on a USB stick. Or save it in "the cloud", so you can access it wherever you are. You'll want contact numbers and any pertinent information on your loved one. Why not also add family information that you'll need? Don't forget to have your loved one's identification and insurance information handy.
4. Consider replacing candles and open flames with battery-operated and independent power sources that are safer. Remember that your loved one may not have the stamina or energy to flee in a fire, so err on the side of caution.
5. If you live in an area that is prone to ice and snow storms, be sure to be prepared. Know where blankets are, have a couple of days worth of food for your loved one that he or she can eat, and emergency supplies on hand -- consider an emergency radio.
6. Figure out ahead of time what you will do if the power goes out, the phones are down, and the roads are closed. Have a plan. If you know a big storm is coming, know where you will go and decide when you will evacuate.
Don't leave your emergency planning until disaster is upon you. Be proactive. And then, sit back with your loved one and relax. Happy New Year!
For more help with your caregiving, visit The Practical Caregiver Guides:
http://www.practicalcaregiverguides.com/
For a free downloadable ebook version of The Practical Caregiver's Guide to Cancer Care: How to Help Someone You Love, visit my Smashwords page or your favorite ebook store:
http://www.smashwords.com/profile/view/practicalcaregiver
Friday, December 16, 2011
GIFTS FOR CANCER PATIENTS
It's that time of year, and if you're a caregiver for a cancer patient, you may feel stumped about what gifts to give your loved one, especially if it's been a tough cancer year.
When choosing, consider your loved one's needs. Is there neuropathy involved? Or a handicap? Or fatigue? Has he or she lost a lot of weight lately? Have things been too serious or very scary? Gifts that comfort can make your loved one feel safe and cozy.
Suggestions:
-- A soft lap blanket for napping
-- A comfy pillow to rest the head
-- A recliner
-- Easy-to-put-on slippers, slipper socks with treads, velcro-fastened or slip-on shoes
-- Clothing that doesn't require a lot of effort to put on -- sweats, lounge wear, pants with elastic waists, tops that don't have a lot of buttons
-- A funky cane -- something colorful, camouflage, folding, or even one that has a seat attached, for when your loved one gets tired and needs to just rest a minute
-- A colorful hat, scarf, or turban
-- A calculator and/or dictionary, to compensate for those "chemo brain" moments
But don't stop there -- consider other unusual offerings:
-- Dinner and a movie of your loved one's choice
-- A drive to see the Christmas lights
-- Tickets to a holiday show
Wherever your loved one is in cancer treatment and management, make your gifts fit his or her physical, mental, and emotional needs. Cancer always takes its toll on quality of life for your loved one. Whatever you can do to help compensate for the loss of opportunities and abilities is something that will empower and encourage your loved one. Sometimes the biggest gift you can give someone with cancer is to keep hope alive. No matter what happens, your commitment to be there through rain or shine, sleet or snow, is wonderful gift to give. Celebrate what is good at this very moment and put cancer on the back burner for a while. Love, not cancer, makes the world go around, caregivers!
For more free help with cancer caregiving, visit:
The Practical Caregiver Guides
If you would like a free downloadable copy of The Practical Caregiver's Guide to Cancer Care: How to Help Someone You Love, visit my Smashwords page:
http://www.smashwords.com/profile/view/practicalcaregiver
When choosing, consider your loved one's needs. Is there neuropathy involved? Or a handicap? Or fatigue? Has he or she lost a lot of weight lately? Have things been too serious or very scary? Gifts that comfort can make your loved one feel safe and cozy.
Suggestions:
-- A soft lap blanket for napping
-- A comfy pillow to rest the head
-- A recliner
-- Easy-to-put-on slippers, slipper socks with treads, velcro-fastened or slip-on shoes
-- Clothing that doesn't require a lot of effort to put on -- sweats, lounge wear, pants with elastic waists, tops that don't have a lot of buttons
-- A funky cane -- something colorful, camouflage, folding, or even one that has a seat attached, for when your loved one gets tired and needs to just rest a minute
-- A colorful hat, scarf, or turban
-- A calculator and/or dictionary, to compensate for those "chemo brain" moments
But don't stop there -- consider other unusual offerings:
-- Dinner and a movie of your loved one's choice
-- A drive to see the Christmas lights
-- Tickets to a holiday show
Wherever your loved one is in cancer treatment and management, make your gifts fit his or her physical, mental, and emotional needs. Cancer always takes its toll on quality of life for your loved one. Whatever you can do to help compensate for the loss of opportunities and abilities is something that will empower and encourage your loved one. Sometimes the biggest gift you can give someone with cancer is to keep hope alive. No matter what happens, your commitment to be there through rain or shine, sleet or snow, is wonderful gift to give. Celebrate what is good at this very moment and put cancer on the back burner for a while. Love, not cancer, makes the world go around, caregivers!
For more free help with cancer caregiving, visit:
The Practical Caregiver Guides
If you would like a free downloadable copy of The Practical Caregiver's Guide to Cancer Care: How to Help Someone You Love, visit my Smashwords page:
http://www.smashwords.com/profile/view/practicalcaregiver
Monday, December 12, 2011
WHY A FREE DOWNLOADABLE CANCER CARE BOOK?
When my mother was being treated for cancer and I was her caregiver, I had the good fortune to meet some amazing people. Some were medical personnel, but most were patients and family members. Everyone has a story, but some stories are better than others. Why? Because they inspire us to do more and to be more. Along the road to life, there are many heroes who started out as ordinary people. As they battled cancer, sometimes over decades, they began to learn things about their disease, as did their caregivers. How you approach cancer management matters.
One thing I gained from having access to so many cancer patients and their caregivers over the years was reinforced by my own early experiences in working with pediatric cancer patients. With cancer, you have to keep hope alive. Make time to play when you feel good. Sometimes everything can hinge on just surviving a day longer. I learned that from little Scotty, deemed to be dying by his pediatric oncologist. I was called in to say my goodbyes because little Scotty wasn't expected to survive the weekend. As I sat with him in the ICU, I threw caution to the wind. I put aside his terminal diagnosis and I embraced the moment. Having pulled out my compact mirror to check my reflection, I was surprised by little Scotty's request. Could he put makeup on me? Who was I to say no to a dying child. By the time he was done applying eye shadow and lipstick, I looked like Snookie at the Jersey Shore. And therein lies the magic of living in the moment. Scotty laughed at the sight of me, and the sound of his laughter was contagious. Whatever was to come didn't matter. Scotty was having fun. He was being a child, even when the chemotherapy made him feel as sick as a dog. Soon he was into remission, back to being a rambunctious five-year-old with a silly streak a mile wide.
Do I suggest that his recovery was a miracle? No. I believe it was a combination of good oncology, good care by his family, and the chance to forget about the cancer long enough to be a kid again. Every cancer patient regular "fugetaboutit" time, when you put aside the disease and get back to who you are. There are hopes, dreams, plans, desires to be fulfilled.
When cancer caregivers understand that there are common tasks and strategies for helping their loved ones better manage their lives with cancer, that's when good things happen. Learning to live in the here-and-now, understanding that we have these moments to enjoy and we shouldn't waste them -- that's when good things happen. When we take our loved ones to cancer treatment and then take them out for fun, that's when good things happen. Treat the disease and then feed the soul.
That's why I created the free caregiver ebooks -- because of all the wonderful people I met along the cancer highway, who graciously shared some important life lessons with me. But I also learned from all the people who lost their joy, who clung to misery and anger with both hands on the steering wheel. Cancer is never an easy diagnosis. There is a lot of dread and uncertainty that comes with the territory. But for everyone who rose above, who let hope live in the heart, even for a day, you were my inspiration for The Practical Caregiver Guides. It's never over until the Fat Lady sings, so Carpe Diem!
If you would like to download my free cancer caregiver ebook, "The Practical Caregiver's Guide to Cancer Care: How to Help Someone You Love", visit Smashwords:
http://www.smashwords.com/books/view/110999
If you would like more free caregiver education, video tips, and inspiration, visit The Practical Caregiver Guides:
www.practicalcaregiverguides.com
One thing I gained from having access to so many cancer patients and their caregivers over the years was reinforced by my own early experiences in working with pediatric cancer patients. With cancer, you have to keep hope alive. Make time to play when you feel good. Sometimes everything can hinge on just surviving a day longer. I learned that from little Scotty, deemed to be dying by his pediatric oncologist. I was called in to say my goodbyes because little Scotty wasn't expected to survive the weekend. As I sat with him in the ICU, I threw caution to the wind. I put aside his terminal diagnosis and I embraced the moment. Having pulled out my compact mirror to check my reflection, I was surprised by little Scotty's request. Could he put makeup on me? Who was I to say no to a dying child. By the time he was done applying eye shadow and lipstick, I looked like Snookie at the Jersey Shore. And therein lies the magic of living in the moment. Scotty laughed at the sight of me, and the sound of his laughter was contagious. Whatever was to come didn't matter. Scotty was having fun. He was being a child, even when the chemotherapy made him feel as sick as a dog. Soon he was into remission, back to being a rambunctious five-year-old with a silly streak a mile wide.
Do I suggest that his recovery was a miracle? No. I believe it was a combination of good oncology, good care by his family, and the chance to forget about the cancer long enough to be a kid again. Every cancer patient regular "fugetaboutit" time, when you put aside the disease and get back to who you are. There are hopes, dreams, plans, desires to be fulfilled.
When cancer caregivers understand that there are common tasks and strategies for helping their loved ones better manage their lives with cancer, that's when good things happen. Learning to live in the here-and-now, understanding that we have these moments to enjoy and we shouldn't waste them -- that's when good things happen. When we take our loved ones to cancer treatment and then take them out for fun, that's when good things happen. Treat the disease and then feed the soul.
That's why I created the free caregiver ebooks -- because of all the wonderful people I met along the cancer highway, who graciously shared some important life lessons with me. But I also learned from all the people who lost their joy, who clung to misery and anger with both hands on the steering wheel. Cancer is never an easy diagnosis. There is a lot of dread and uncertainty that comes with the territory. But for everyone who rose above, who let hope live in the heart, even for a day, you were my inspiration for The Practical Caregiver Guides. It's never over until the Fat Lady sings, so Carpe Diem!
If you would like to download my free cancer caregiver ebook, "The Practical Caregiver's Guide to Cancer Care: How to Help Someone You Love", visit Smashwords:
http://www.smashwords.com/books/view/110999
If you would like more free caregiver education, video tips, and inspiration, visit The Practical Caregiver Guides:
www.practicalcaregiverguides.com
Monday, November 28, 2011
WHAT DOES THE PRACTICAL CAREGIVER DO FOR CANCER PATIENTS?
Are you a caregiver for a cancer patient? Are you a cancer patient? Do you work with cancer patients? If so, the Practical Caregiver is the answer for caregiver education. Why?
I started the Practical Caregiver concept because I want people to know we can do a better job of supporting and educating caregivers. Does that matter for cancer patients? You bet it does. The more a caregiver understands the complexities of cancer care, the more easily he or she can address the REAL needs of a cancer patient.
Cancer and its treatment affect your loved one's:
1. appetite
2. diet
3. immune system
4. personality
5. energy level
6. life plans
Is the Practical Caregiver providing medical advice? Absolutely not. That's why we have doctors, nurses, nutritionists and others working on cancer treatment.
The Practical Caregiver provides education to cancer caregivers, to help you understand your loved one's experience better and to help you cope with the stress of being a cancer caregiver. It's available to any and all caregivers, regardless of what medical facility is treating their loved one.
Did you know that very often cancer patients are in need of different types of caregiving? Starting out treatment for cancer in the early stages is very different than catching it in a later stage. You will have to adapt your care and your own life to fit the specific needs of your loved one. Can you do this on your own?
Many times cancer treatment becomes a "serial" issue. Your loved one may have recurrences. These days, things have changed on the cancer treatment front. The disease is managed over years in many cases. As a caregiver, you will have to step up, step back, step up, and step back over and over again. When your loved one is feeling good, you won't need to provide as much care, if any. When your loved one needs your help, it's important for you to be there. That means planning for the future in reasonable, sensible ways. Expect to provide care, build your resources list, find out what you can use -- being prepared is important.
Cancer can also, in its later stages, be a progressive disease, so it's important to understand the issues in coping with a terminal illness. You, as a cancer caregiver, want to make your loved one as comfortable and active as possible. Life is about living, not about dying. We all die, without much choice in the matter. We can and we should choose how we live. Make it worthwhile.
What's the biggest issue for cancer patients and caregivers? Managing the fear of the disease. Cancer is the big black cloud hanging over a loved one's head. How do you comfort someone with cancer? How do you help him or her manage the fear better? Fear creates stress and stress takes it toll on everyone.
The Practical Caregiver's mission is to reduce cancer caregiver stress. I believe the better I can help you to understand what your loved one is facing, I can provide to you the tools to do a better job. And if you do a better job as a cancer caregiver, your loved one is likely to have a better, happier, healthier life. That's a win-win, isn't it?
So, cancer caregivers, use the Practical Caregiver's free education. Take advantage of the advice. Believe that what you do for your loved one makes a difference. When you care about more than just the cancer, life becomes fuller, richer, and worth living. Be inspired.
If you would like more help with cancer caregiving, check out:
The Practical Caregiver Guides
For help organizing the holiday caregiving (and who doesn't), check out my new book at Smashwords, available for download:
The Practical Caregiver's Rules for Happy Holidays
I started the Practical Caregiver concept because I want people to know we can do a better job of supporting and educating caregivers. Does that matter for cancer patients? You bet it does. The more a caregiver understands the complexities of cancer care, the more easily he or she can address the REAL needs of a cancer patient.
Cancer and its treatment affect your loved one's:
1. appetite
2. diet
3. immune system
4. personality
5. energy level
6. life plans
Is the Practical Caregiver providing medical advice? Absolutely not. That's why we have doctors, nurses, nutritionists and others working on cancer treatment.
The Practical Caregiver provides education to cancer caregivers, to help you understand your loved one's experience better and to help you cope with the stress of being a cancer caregiver. It's available to any and all caregivers, regardless of what medical facility is treating their loved one.
Did you know that very often cancer patients are in need of different types of caregiving? Starting out treatment for cancer in the early stages is very different than catching it in a later stage. You will have to adapt your care and your own life to fit the specific needs of your loved one. Can you do this on your own?
Many times cancer treatment becomes a "serial" issue. Your loved one may have recurrences. These days, things have changed on the cancer treatment front. The disease is managed over years in many cases. As a caregiver, you will have to step up, step back, step up, and step back over and over again. When your loved one is feeling good, you won't need to provide as much care, if any. When your loved one needs your help, it's important for you to be there. That means planning for the future in reasonable, sensible ways. Expect to provide care, build your resources list, find out what you can use -- being prepared is important.
Cancer can also, in its later stages, be a progressive disease, so it's important to understand the issues in coping with a terminal illness. You, as a cancer caregiver, want to make your loved one as comfortable and active as possible. Life is about living, not about dying. We all die, without much choice in the matter. We can and we should choose how we live. Make it worthwhile.
What's the biggest issue for cancer patients and caregivers? Managing the fear of the disease. Cancer is the big black cloud hanging over a loved one's head. How do you comfort someone with cancer? How do you help him or her manage the fear better? Fear creates stress and stress takes it toll on everyone.
The Practical Caregiver's mission is to reduce cancer caregiver stress. I believe the better I can help you to understand what your loved one is facing, I can provide to you the tools to do a better job. And if you do a better job as a cancer caregiver, your loved one is likely to have a better, happier, healthier life. That's a win-win, isn't it?
So, cancer caregivers, use the Practical Caregiver's free education. Take advantage of the advice. Believe that what you do for your loved one makes a difference. When you care about more than just the cancer, life becomes fuller, richer, and worth living. Be inspired.
If you would like more help with cancer caregiving, check out:
The Practical Caregiver Guides
For help organizing the holiday caregiving (and who doesn't), check out my new book at Smashwords, available for download:
The Practical Caregiver's Rules for Happy Holidays
Tuesday, November 22, 2011
INTERVIEW: KATHY MCGONIGAL, ONCOLOGY NURSE
In honor of National Family Caregiver Month, I've invited Kathy McGonigal, an oncology-certified nurse with almost 20 years of experience to answer some questions. My goal is to help cancer caregivers do a better job of helping their loved ones manage the disease as much as is possible.
Sara:
Hi, Kathy. I'm so glad you could join us. I really value your experience as an oncology nurse. Let me ask you this. If you could give one piece of advice to caregivers at the start of treatment for their loved ones, what would that be?
Kathy:
It's hard to give just one but I would say take care of "you". This is the most difficult for the caregiver to understand. They feel like they have to be everything to their loved one all the time. Let others help you. Admit when you are overwhelmed. Taking a break is important. Eat healthy and get a lot of rest.
Sara:
So, so true. It really is critical that we take care of ourselves, so we can be there for the people we love. What the most common mistake you've seen caregivers make in taking care of loved ones with cancer? Is there more than one way to overcome this?
Kathy:
When patients hear the word cancer, everything changes. Most patients want to talk about their fears. Listen. Really listen. Instead of the usual "Don't talk like that" or "Everything will be fine", it is important to acknowledge their fears. It is also okay for you to tell them you are afraid too. Once words are spoken out loud, some of the fear disappears.
Sara:
I think listening is probably the best tool a caregiver can have in the caregiver tool box. It helps you to recognize when there's a serious problem and to get the right help from your cancer treatment team. And a caregiver who is a good listener makes a cancer patient feel much more connected. It's scary enough to hear the word, "cancer", so knowing you have good support can make it all a little less lonely. How important is it for cancer families to understand the type of cancer their loved ones have and to understand the treatment that's being given? Does it make a difference?
Kathy:
Families who understand the disease their loved one is suffering from is very important. You will be getting a lot of advice from other cancer survivors and caregivers. Not all cancer is created equal. Knowing what you are dealing with allows you to help make educated decisions and make reachable goals. The more educated you are, the less afraid you are.
Sara:
I think that's really true about getting advice from other cancer survivors and caregivers. I met some amazing people during my mom's treatments, and having the chance to talk to them about their experiences really helped me to do a better job in caring for my mom. One issue that seems to come up a lot with cancer patients is eating. Nutrition is often an important element in helping cancer patients get through the rigors of treatment. Do you have a good tip for feeding a reluctant patient?
Kathy:
Eating is important but it can also be a source of frustration between caregivers and patients. Feeding an illness is something we have all learned from our mothers. The patient knows how important it is to eat but it is not always possible. Think about how you feel when you are ill before you try and "force" your loved one to eat. Let the patient go. Make sure there are a lot of simple nutrient rich foods on hand. Cook simple so the smells are not overwhelming. Don't make the patient feel like you are monitoring everything they eat or not eat. It will cause too much anxiety. The patient will eat when they can. Leave it up to the doctors and nurses to address nutrition.
Sara:
Ah, what could be more annoying than the Food Police? How true. That's a good point, too, about the cooking smells, especially if your loved one doesn't already feel well. Reaching out to the medical team for help is good, solid advice, Kathy. As an experienced oncology nurse, you're working on the front lines and I'm sure you've seen a lot over the years. Dealing with cancer can be stressful on a daily basis. A lot of cancer caregivers become overwhelmed. Do you have your own favorite ways of dealing with stress when you've had a tough week at work?
Kathy:
Wow, that's a hard one and it is sometimes very difficult. I try to apply everything I learn from my patients into my personal life. I try to take nothing for granted. No matter how long you live, it is always not long enough. As stressful as my job can be, I have been privileged and honored to be invited into the lives of my patients at what might be the most vulnerable time of life. They have all enriched my life in ways most people do not get to experience. It is amazing to watch the human spirit take over. If you are a caregiver, you too will learn that while the patient says they couldn't get through it without you, you will be the one who gets the biggest gift of all. You make it possible for your loved one to fight.
Sara:
What a great point to make to caregivers. I've seen that time and time again. Caregivers are the wind beneath a loved one's wings and yet we're the ones who benefit when we really make an effort to give the right kind of support for those we love. It changes lives, especially our own. Thank you so much, Kathy, for sharing your insight and wisdom. I know caregivers will be inspired by your words.
Contact:
Kathy McGonigal
kathymcgonigal@gmail.com
Sara:
Hi, Kathy. I'm so glad you could join us. I really value your experience as an oncology nurse. Let me ask you this. If you could give one piece of advice to caregivers at the start of treatment for their loved ones, what would that be?
Kathy:
It's hard to give just one but I would say take care of "you". This is the most difficult for the caregiver to understand. They feel like they have to be everything to their loved one all the time. Let others help you. Admit when you are overwhelmed. Taking a break is important. Eat healthy and get a lot of rest.
Sara:
So, so true. It really is critical that we take care of ourselves, so we can be there for the people we love. What the most common mistake you've seen caregivers make in taking care of loved ones with cancer? Is there more than one way to overcome this?
Kathy:
When patients hear the word cancer, everything changes. Most patients want to talk about their fears. Listen. Really listen. Instead of the usual "Don't talk like that" or "Everything will be fine", it is important to acknowledge their fears. It is also okay for you to tell them you are afraid too. Once words are spoken out loud, some of the fear disappears.
Sara:
I think listening is probably the best tool a caregiver can have in the caregiver tool box. It helps you to recognize when there's a serious problem and to get the right help from your cancer treatment team. And a caregiver who is a good listener makes a cancer patient feel much more connected. It's scary enough to hear the word, "cancer", so knowing you have good support can make it all a little less lonely. How important is it for cancer families to understand the type of cancer their loved ones have and to understand the treatment that's being given? Does it make a difference?
Kathy:
Families who understand the disease their loved one is suffering from is very important. You will be getting a lot of advice from other cancer survivors and caregivers. Not all cancer is created equal. Knowing what you are dealing with allows you to help make educated decisions and make reachable goals. The more educated you are, the less afraid you are.
Sara:
I think that's really true about getting advice from other cancer survivors and caregivers. I met some amazing people during my mom's treatments, and having the chance to talk to them about their experiences really helped me to do a better job in caring for my mom. One issue that seems to come up a lot with cancer patients is eating. Nutrition is often an important element in helping cancer patients get through the rigors of treatment. Do you have a good tip for feeding a reluctant patient?
Kathy:
Eating is important but it can also be a source of frustration between caregivers and patients. Feeding an illness is something we have all learned from our mothers. The patient knows how important it is to eat but it is not always possible. Think about how you feel when you are ill before you try and "force" your loved one to eat. Let the patient go. Make sure there are a lot of simple nutrient rich foods on hand. Cook simple so the smells are not overwhelming. Don't make the patient feel like you are monitoring everything they eat or not eat. It will cause too much anxiety. The patient will eat when they can. Leave it up to the doctors and nurses to address nutrition.
Sara:
Ah, what could be more annoying than the Food Police? How true. That's a good point, too, about the cooking smells, especially if your loved one doesn't already feel well. Reaching out to the medical team for help is good, solid advice, Kathy. As an experienced oncology nurse, you're working on the front lines and I'm sure you've seen a lot over the years. Dealing with cancer can be stressful on a daily basis. A lot of cancer caregivers become overwhelmed. Do you have your own favorite ways of dealing with stress when you've had a tough week at work?
Kathy:
Wow, that's a hard one and it is sometimes very difficult. I try to apply everything I learn from my patients into my personal life. I try to take nothing for granted. No matter how long you live, it is always not long enough. As stressful as my job can be, I have been privileged and honored to be invited into the lives of my patients at what might be the most vulnerable time of life. They have all enriched my life in ways most people do not get to experience. It is amazing to watch the human spirit take over. If you are a caregiver, you too will learn that while the patient says they couldn't get through it without you, you will be the one who gets the biggest gift of all. You make it possible for your loved one to fight.
Sara:
What a great point to make to caregivers. I've seen that time and time again. Caregivers are the wind beneath a loved one's wings and yet we're the ones who benefit when we really make an effort to give the right kind of support for those we love. It changes lives, especially our own. Thank you so much, Kathy, for sharing your insight and wisdom. I know caregivers will be inspired by your words.
Contact:
Kathy McGonigal
kathymcgonigal@gmail.com
Thursday, October 20, 2011
VIDEO TIP -- HOPE MATTERS
Need some help understanding why hope is so important for cancer patients? Here's a quick video tip!
For more help, visit THE PRACTICAL CAREGIVER GUIDES
For more help, visit THE PRACTICAL CAREGIVER GUIDES
RADIATION AFTER SURGERY CUTS BREAST CANCER RECURRENCE
Someone I love has breast cancer. Newly diagnosed, still shocked and saddened by the news, she's struggled with the decision about cancer treatment. Discussions with doctors and her husband, long hours mulling over her options -- this person I love is just beginning the cancer journey. Should she give up all hope? Should she fear the future?
If I can do nothing more for the many who are in her shoes, let me do this. Let me spread the word that British researchers reported in the Lancet that an analysis of seventeen studies, involving almost 11,000 women who had breast cancers surgically removed and received follow-up radiation treatment, showed a significant reduction in the recurrence rate to 19.3% in the first ten years after surgery -- the original rate was 35%! That means that another 15 women in every 100 survived because of radiation after breast cancer surgery. Imagine 15 more women at the gym, walking on treadmills or enjoying dance classes. Imagine 15 more women at the local coffee house, sipping their lattes and sharing their stories. Imagine 15 more mothers and grandmothers at family reunions, laughing and passing the mashed potatoes. Imagine 15 more women at work, fighting fires, teaching students, caring patients, driving buses and cabs, writing the next Booker Prize novel, or just handing you your change at the grocery store. Those 15 women who survived breast cancer surgery and had radiation as a follow-up lived longer. Where there is life, there is hope. Where there is hope, there is the promise of a cure.
Denise Grady, of the New York Times, reported on the Lancet research:
"Radiation Therapy After Breast Cancer Surgery Cuts Recurrence, Study Says"
You may not think it's a big deal those 15 women survived their first ten years after breast cancer surgery and radiation, but I do. Why? These women are the future of breast cancer treatment -- they are the survivors. Researchers will study them, study the treatments they received, in order to help those of us who are newly diagnosed.
Someone I love has breast cancer, and I want her to know that she has a good fighting chance to survive it with the right treatment. Every day, we learn more and more about how we can use the information we get from cancer survivors to tweak cancer treatments so they work better and people live bigger, better lives. Every cancer patient deserves to have good options. This research analysis is going to change lives. Will it change the life of someone you love?
For more help with cancer caregiving, visit THE PRACTICAL CAREGIVER GUIDES
If I can do nothing more for the many who are in her shoes, let me do this. Let me spread the word that British researchers reported in the Lancet that an analysis of seventeen studies, involving almost 11,000 women who had breast cancers surgically removed and received follow-up radiation treatment, showed a significant reduction in the recurrence rate to 19.3% in the first ten years after surgery -- the original rate was 35%! That means that another 15 women in every 100 survived because of radiation after breast cancer surgery. Imagine 15 more women at the gym, walking on treadmills or enjoying dance classes. Imagine 15 more women at the local coffee house, sipping their lattes and sharing their stories. Imagine 15 more mothers and grandmothers at family reunions, laughing and passing the mashed potatoes. Imagine 15 more women at work, fighting fires, teaching students, caring patients, driving buses and cabs, writing the next Booker Prize novel, or just handing you your change at the grocery store. Those 15 women who survived breast cancer surgery and had radiation as a follow-up lived longer. Where there is life, there is hope. Where there is hope, there is the promise of a cure.
Denise Grady, of the New York Times, reported on the Lancet research:
"Radiation Therapy After Breast Cancer Surgery Cuts Recurrence, Study Says"
You may not think it's a big deal those 15 women survived their first ten years after breast cancer surgery and radiation, but I do. Why? These women are the future of breast cancer treatment -- they are the survivors. Researchers will study them, study the treatments they received, in order to help those of us who are newly diagnosed.
Someone I love has breast cancer, and I want her to know that she has a good fighting chance to survive it with the right treatment. Every day, we learn more and more about how we can use the information we get from cancer survivors to tweak cancer treatments so they work better and people live bigger, better lives. Every cancer patient deserves to have good options. This research analysis is going to change lives. Will it change the life of someone you love?
For more help with cancer caregiving, visit THE PRACTICAL CAREGIVER GUIDES
Wednesday, October 19, 2011
WHAT ARE THE PRACTICAL CAREGIVER GUIDES?
What are the Practical Caregiver Guides and why do they exist? The answer is simple. Family caregivers are not normally trained in how to provide care. They slip through the cracks. They stumble their way through care. Burned out, exhausted, just trying to survive, family caregivers try to cover all the bases, but it's not easy.
Hospital workers are trained. Even home health aides have to be certified. But family caregivers? It's all relative.
The truth is that the more you know about your loved one's disease, the better the care you give. In cancer management, it can be critical. Want an example of some things you should know?
Eating can be exhausting for cancer patients, and many just give up because it's too much effort. It takes energy to chew food. If your loved one is too tired to eat, he or she will lose too much weight. You need to understand how to feed your loved one.
Scheduling activities that work with, not against, cancer treatments improves quality of life for your loved one. You need to know how chemotherapy affects your loved one in order to maximize the energy he or she has.
Still think you don't have a real job to do? The biggest problem for most cancer patients is managing the fear of the disease. What can you do to help your loved one? If you don't understand the toll cancer takes on relationships, you may find yourself feeling lost and alone.
A good family caregiver understands that cancer patients can be affected by the cancer treatments as much as the cancer. In order to help your loved one, you have to believe that what you do can have a positive outcome. But you won't feel that way until you accept that the quality of your caregiving will improve your loved one's chances of managing and navigating cancer.
You want your loved one to have the best medical treatment. Be part of that team. Learn about the disease and strategies to keep your loved one healthier. Take the first step. Have the courage to confront the disease, so your loved one can live better.
For help with your caregiving, visit www.practicalcaregiverguides.com
Hospital workers are trained. Even home health aides have to be certified. But family caregivers? It's all relative.
The truth is that the more you know about your loved one's disease, the better the care you give. In cancer management, it can be critical. Want an example of some things you should know?
Eating can be exhausting for cancer patients, and many just give up because it's too much effort. It takes energy to chew food. If your loved one is too tired to eat, he or she will lose too much weight. You need to understand how to feed your loved one.
Scheduling activities that work with, not against, cancer treatments improves quality of life for your loved one. You need to know how chemotherapy affects your loved one in order to maximize the energy he or she has.
Still think you don't have a real job to do? The biggest problem for most cancer patients is managing the fear of the disease. What can you do to help your loved one? If you don't understand the toll cancer takes on relationships, you may find yourself feeling lost and alone.
A good family caregiver understands that cancer patients can be affected by the cancer treatments as much as the cancer. In order to help your loved one, you have to believe that what you do can have a positive outcome. But you won't feel that way until you accept that the quality of your caregiving will improve your loved one's chances of managing and navigating cancer.
You want your loved one to have the best medical treatment. Be part of that team. Learn about the disease and strategies to keep your loved one healthier. Take the first step. Have the courage to confront the disease, so your loved one can live better.
For help with your caregiving, visit www.practicalcaregiverguides.com
Tuesday, October 18, 2011
CAN NEW RESEARCH IN COLON CANCER BE A REASON TO HOPE FOR A CURE?
If you're caring for a loved one with colon cancer, you may take heart from new research. Two cancer studies have identified unusually high levels of a specific bacterium not usually found in the colon, Fusobacterium, in colon cancer tumors.
The study at the British Columbia Cancer Agency, headed by Dr. Robert A. Holt and his team, used genetic analysis to identify the unexpected connection in Canadian patients, according to a report in the NY Times by Gina Kolata:
http://www.nytimes.com/2011/10/18/health/18cancer.html
Another study at the Dana Farber Cancer Institute, led by Dr. Matthew Meyerson and his associates, found similar results in patients from the US, Vietnam, and Spain.
All patients studied had higher levels of the Fusobacterium in their tumors than found in normal colon cells. Dr. Holt found that some of his patients had an average of 415 times as many Fusobacteria as normal cells. Dr. Meyerson's research focused on the DNA aspect. He was unable to determine if the Fusobacteria is the trigger of the colon cancer or the cause of it, but the findings are considered provocative. Why? Because this may allow researchers to develop a vaccine to prevent colon cancer.
One question that cancer researchers will have to answer is whether inflammation, caused by the bacteria, is the start of colon cancer or if it speeds the development of cancer. Both Dr. Holt and Dr. Meyerson admit uncertainty in the cause and effect of Fusobacterium in colon cancer. But at least scientists have a potential culprit to investigate, examine, and follow.
For families with a loved one who has this disease, it can offer hope that somewhere, somehow, at some point in time, there may be answers about colon cancer, and with answers, there can be better disease management, treatment, and hopefully even a cure. Never give up hope!
The study at the British Columbia Cancer Agency, headed by Dr. Robert A. Holt and his team, used genetic analysis to identify the unexpected connection in Canadian patients, according to a report in the NY Times by Gina Kolata:
http://www.nytimes.com/2011/10/18/health/18cancer.html
Another study at the Dana Farber Cancer Institute, led by Dr. Matthew Meyerson and his associates, found similar results in patients from the US, Vietnam, and Spain.
All patients studied had higher levels of the Fusobacterium in their tumors than found in normal colon cells. Dr. Holt found that some of his patients had an average of 415 times as many Fusobacteria as normal cells. Dr. Meyerson's research focused on the DNA aspect. He was unable to determine if the Fusobacteria is the trigger of the colon cancer or the cause of it, but the findings are considered provocative. Why? Because this may allow researchers to develop a vaccine to prevent colon cancer.
One question that cancer researchers will have to answer is whether inflammation, caused by the bacteria, is the start of colon cancer or if it speeds the development of cancer. Both Dr. Holt and Dr. Meyerson admit uncertainty in the cause and effect of Fusobacterium in colon cancer. But at least scientists have a potential culprit to investigate, examine, and follow.
For families with a loved one who has this disease, it can offer hope that somewhere, somehow, at some point in time, there may be answers about colon cancer, and with answers, there can be better disease management, treatment, and hopefully even a cure. Never give up hope!
Monday, October 17, 2011
HOW THE MACMILLAN CANCER SUPPORT DOES COFFEE
The world's biggest coffee morning -- how wonderful is that? Who doesn't like a cup of coffee and some schmoozing?
I know that health care in the UK is very different from in the US. There are charitable trusts to financially support cancer programs. What I love about UK cancer groups is that they make a huge push to bring it home to the people. Not only do they make the public more aware of their programs, they offer great connectivity between cancer patients and the rest of the world, the so-called "normal" population:
http://coffee.macmillan.org.uk/Home.aspx
Here's a little secret about events like this. They feel good. They feel human. They serve a real purpose, because they involve something we all enjoy doing -- socializing over coffee. It's part public awareness campaign, part fundraiser, and lots of fun. Not everyone can run a 5K or walk for a cause. But who can't sit down with friends and neighbors for a cup of coffee? It's so people-friendly.
The truth is there is nothing fun about cancer. It stinks. It changes families. It changes lives. It changes the people who have the disease. But when we connect on a human level and we reach out to share, that's when communities form. That's when support becomes real. "I've been there. Let me share with you the tricks I used to get through it."
A lot of people shy away from support groups. Sometimes emotions are just too raw, too close to the surface. People don't want to think about their feelings, let alone talk about them. That's why events like the World's Biggest Coffee Morning make sense. It's about coming together in a fun way to deal with a nasty disease. Hats off to the Macmillan Cancer Support people. This is a brilliant idea.
If you're a cancer caregiver, and you need tips and advice on helping your loved one, visit:
The Practical Caregiver Guides
I know that health care in the UK is very different from in the US. There are charitable trusts to financially support cancer programs. What I love about UK cancer groups is that they make a huge push to bring it home to the people. Not only do they make the public more aware of their programs, they offer great connectivity between cancer patients and the rest of the world, the so-called "normal" population:
http://coffee.macmillan.org.uk/Home.aspx
Here's a little secret about events like this. They feel good. They feel human. They serve a real purpose, because they involve something we all enjoy doing -- socializing over coffee. It's part public awareness campaign, part fundraiser, and lots of fun. Not everyone can run a 5K or walk for a cause. But who can't sit down with friends and neighbors for a cup of coffee? It's so people-friendly.
The truth is there is nothing fun about cancer. It stinks. It changes families. It changes lives. It changes the people who have the disease. But when we connect on a human level and we reach out to share, that's when communities form. That's when support becomes real. "I've been there. Let me share with you the tricks I used to get through it."
A lot of people shy away from support groups. Sometimes emotions are just too raw, too close to the surface. People don't want to think about their feelings, let alone talk about them. That's why events like the World's Biggest Coffee Morning make sense. It's about coming together in a fun way to deal with a nasty disease. Hats off to the Macmillan Cancer Support people. This is a brilliant idea.
If you're a cancer caregiver, and you need tips and advice on helping your loved one, visit:
The Practical Caregiver Guides
Sunday, October 9, 2011
CANCER CAREGIVING AND GUMPTION
A lot of people think that cancer caregivers are just there to drive folks back and forth to cancer treatment. You can call a taxi driver for that service. A real cancer caregiver is much more than that, and it's important to understand what a vital role he or she plays.
Cancer is a scary disease, no matter how you look at it. From the smallest skin cancer to the biggest malignant tumor, the psychological impact of cancer can often do almost as much damage as the disease or its treatment. That's why good cancer caregivers have gumption.
What's gumption? It's common sense, initiative, shrewdness, courage and resourcefulness. These are all the good qualities for a cancer caregiver. You look for ways to help your loved one navigate the cancer maze. Your confidence and faith that you can make a positive difference can often inspire your loved one to try a little harder to survive. It's not about fooling your loved one into believing that survival is possible. It's about convincing your loved one that life is still going to be okay with cancer, no matter what the outcome. That takes gumption.
Good cancer caregivers know that they're afraid for their loved ones, but they also know that they should step up to the plate and be a rock. It's about understanding that you're the shoulder to cry on, the one your loved one counts on to be steady and sure. When you have your own doubts, you take them elsewhere, because you know that your doubts will be a burden for your loved one. It's not that you don't worry, because you always do. It's that you share your fears with others, because you understand that you need to be the strength for your loved one.
Gumption makes good caregivers take advantage of the good times and make them better. Cancer changes everything, so finding the simple things to celebrate requires true spirit. You have to make excuses for enjoying life -- it's a beautiful day, it's a rainy day, it's a snowy day. A cancer caregiver with gumption doesn't care what the excuse is -- he or she finds a reason to laugh, to try something new, to get out and have some fun with the loved one.
Everywhere you look, you hear people describe cancer patients as brave souls who are fighting a terrific battle. The truth is cancer patients are just human beings, doing the best they can with what they've got. They have moments in which they feel confident and moments in which they have doubts. If they have caregivers with gumption, that's the kind of support that can help them through the dark moments.
You don't have to be perfect to be a cancer caregiver, but it helps to have gumption. You'll look for the opportunities to bring quality to life, to give comfort where comfort is needed and courage when courage is needed, to encourage laughter and love to fill the tiny cracks that form in the heart from the pain of having cancer. The truth is we're social creatures and having partners to help us on difficult stretches of the road of life matter. No one should ever face cancer alone. That's why good cancer caregivers have the guts to step up and step in to make a difference in the lives of cancer patients. We're smart enough to know that if the shoe were on the other foot, we'd want this kind of support.
Cancer is a scary disease, no matter how you look at it. From the smallest skin cancer to the biggest malignant tumor, the psychological impact of cancer can often do almost as much damage as the disease or its treatment. That's why good cancer caregivers have gumption.
What's gumption? It's common sense, initiative, shrewdness, courage and resourcefulness. These are all the good qualities for a cancer caregiver. You look for ways to help your loved one navigate the cancer maze. Your confidence and faith that you can make a positive difference can often inspire your loved one to try a little harder to survive. It's not about fooling your loved one into believing that survival is possible. It's about convincing your loved one that life is still going to be okay with cancer, no matter what the outcome. That takes gumption.
Good cancer caregivers know that they're afraid for their loved ones, but they also know that they should step up to the plate and be a rock. It's about understanding that you're the shoulder to cry on, the one your loved one counts on to be steady and sure. When you have your own doubts, you take them elsewhere, because you know that your doubts will be a burden for your loved one. It's not that you don't worry, because you always do. It's that you share your fears with others, because you understand that you need to be the strength for your loved one.
Gumption makes good caregivers take advantage of the good times and make them better. Cancer changes everything, so finding the simple things to celebrate requires true spirit. You have to make excuses for enjoying life -- it's a beautiful day, it's a rainy day, it's a snowy day. A cancer caregiver with gumption doesn't care what the excuse is -- he or she finds a reason to laugh, to try something new, to get out and have some fun with the loved one.
Everywhere you look, you hear people describe cancer patients as brave souls who are fighting a terrific battle. The truth is cancer patients are just human beings, doing the best they can with what they've got. They have moments in which they feel confident and moments in which they have doubts. If they have caregivers with gumption, that's the kind of support that can help them through the dark moments.
You don't have to be perfect to be a cancer caregiver, but it helps to have gumption. You'll look for the opportunities to bring quality to life, to give comfort where comfort is needed and courage when courage is needed, to encourage laughter and love to fill the tiny cracks that form in the heart from the pain of having cancer. The truth is we're social creatures and having partners to help us on difficult stretches of the road of life matter. No one should ever face cancer alone. That's why good cancer caregivers have the guts to step up and step in to make a difference in the lives of cancer patients. We're smart enough to know that if the shoe were on the other foot, we'd want this kind of support.
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